Resources and Links
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Medicaid
Thedesk.info is an
online information about Medicaid for people with cognitive disabilities. Maryland is one
of the 11 states currently highlighted.
Medicaid
is health insurance that helps many people who can't afford medical care pay for some or
all of their medical bills. Medicaid is a state administered program and each state sets
its own guidelines regarding eligibility and services.
Maryland
Medicaid Program Description and Information.
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Self-Determination and
Individualized Funding
Consumer-Directed
Budgets and Supports – a section of the Quality Mall Website
Looking for information on how different states implement consumer-directed supports,
individual budgets, and Microboards? Look in the "Consumer-Directed Budgets and
Supports" department.
Individualized
Funding Information Resources
This site is dedicated to providing comprehensive information about the development of
ways that people with disabilities can gain control over the money to pay for needed
community services & supports - a crucial step towards self-determination and
citizenship.
MCARE
MCARE is the National Clearinghouse on Managed Care and Long-Term Supports and Services
for People with Developmental Disabilities and Their Families. The MCARE website seeks to
provide the most current information available on managed care, long-term services and
supports, self-determination, and other related areas. MCARE will provide the latest news
articles, upcoming conferences and events, government documents, research and policy
papers, and individual perspectives.
National Coalition
on Self-Determination – The only national partnership of people with
disabilities, parents and family members who work to promote federal policies that support
the four principles of Self-Determination: freedom, authority, support, and
responsibility. The coalition also supports the Community Imperative – a declaration
asserting the fundamental human right of all people, regardless of the severity of their
disabilities, to community living.
The Center for
Self-Determination is a highly interactive working collaborative of individuals and
organizations committed to the principles of self-determination. The purpose of the
collaborative is to help all persons with disabilities create the lives they want,
connected to and with their communities, and to change the systems that support them.
The OHSU
Center on Self-Determination identifies, develops and shares approaches that promote
the self-determination of people with disabilities and ongoing health conditions.
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Self-Advocacy
Advocating Change
Together
Advocating Change Together (ACT) is a nonprofit disability rights organization run by and
for people with developmental and other disabilities. We are committed to freedom,
equality, and justice for all people with disabilities.
Parallels
In Time contains over 150 pages of information about the history of society's
treatment of persons with developmental disabilities. It also features numerous video and
audio clips, and each page is linked to an audio reading of that page. Parallels in Time
was developed by the Minnesota Governor's Council on Developmental Disabilities. In order
to access the video and audio portions of Parallels In Time you will need QuickTime 3.0 or higher
installed on your computer, and the QuickTime plug-in installed on your browser. QuickTime
allows you to playback numerous digital video and audio formats, and is one of the most
popular and widely used browser plug-ins.
People First of Missouri
- This site has online workshops about self-advocacy, self-determination and
person-centered planning.
Self-Advocate
Leadership Network
The Self-Advocate Leadership Network is a team of self-advocates and professionals who
will travel anywhere to train others on self-determination, community integration,
participant-driven supports, and systems change. The purpose of the Leadership Network is
to prepare self-advocates to play a leadership role in guiding developmental disabilities
systems change in ways that promote self-determination, community integration and
participant-driven supports.
SelfAdvocateNet.com
"This is the home page of the SelfAdvocateNet. We are based in the lovely Fraser
Valley of Beautiful British Columbia, Canada. Recently we have begun networking across our
region. The region is quite large, about 50 kilometers from one end to the other. We have
worked hard to develop this web site as a way of staying in touch not only across our
region, but across the province and the world beyond."
Self Advocates Becoming
Empowered
"OUR MISSION: To ensure that people with disabilities are treated as equals and that
they are given the same decisions, choices, rights, responsibilities, and chances to speak
up to empower themselves; opportunities to make new friends; and to learn from their
mistakes."
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Maryland Sites
Maryland Developmental
Disabilities Council
The Maryland Developmental Disabilities Council advocates for public policy and supportive
practices and opportunities that promote the full inclusion of all people with
developmental disabilities in community life.
Maryland Family
NET Works
Maryland Family Net Works is the most comprehensive online resource for disability-related
information and supports specific to the needs of Maryland families that include a member
with a disability. This is an ever-changing, interactive site designed to empower families
across the state to share, discover and connect with one another.
Maryland Disability Law Center
The Maryland Disability Law Center (MDLC) is a private, non-profit organization staffed by
attorneys and paralegals. MDLC is the Protection and Advocacy organization for Maryland.
The Coordinating Center
The Coordinating Center provides multiple services for individuals with complex medical
needs and disabilities, their families and others who support them, as well as providers
of services. We are a community-based organization, and a private not-for-profit
corporation certified as a minority business enterprise. While we are headquartered in
Anne Arundel County , Maryland, our services are delivered throughout the state,
regionally, and nationally.
Maryland
Developmental Disabilities Administration
The mission of the Developmental Disabilities Administration is to provide leadership to
assure the full participation of individuals with developmental disabilities and their
families in all aspects of community life. In addition, DDA's goal is to promote their
empowerment to access quality supports and services necessary to foster personal growth,
independence and productivity. DDA is the major funding source for services to support
individuals with developmental disabilities in Maryland.
The Arc of Maryland
The Arc of Maryland (formerly the Association for Retarded Citizens) has been working to
improve the lives of children and adults with mental retardation since 1950. From modest
beginnings as a small group of concerned parents, to the largest and strongest
organization assisting persons with mental retardation in Maryland, The Arc has led the
way in promoting new program methodology and utilizing state of the art technology to
benefit individuals with mental retardation and their families.
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Other Related Sites
"Community For All Tool Kit"
Resources for Supported Community Living
This tool kit, a collaborative effort of TASH, AAMR, The Arc, The Center on Human Policy,
The Council on Quality and Leadership, NACDD and the University of Minnesota's Research
and Training Center contains information on supporting quality in the community, what's
wrong with institutions, choice, state strategies and other resources. http://thechp.syr.edu/toolkit/
The Community Imperative
In 1979, the Center on Human Policy at Syracuse University wrote The Community Imperative,
a declaration supporting the right of all people with disabilities to community living.
The Center has reissued The Community Imperative in 2000 and invites endorsements from
individuals and organizations.
Family Voices
Partnering with professionals and families to advocate for health care services that are
family-centered, community-based, comprehensive, coordinated and culturally competent
Home and Community Based
Services Network
This site is the clearinghouse for Community Living Exchange Collaboration.
SSA Home Page
- Information and publications on entitlement programs for people with disabilities.
Human Services Research
Institute (HSRI)
The Human Services Research Institute (HSRI) was established in 1976 with the express
purpose of assisting states and the federal government to enhance services and supports to
people with mental illness and people with mental retardation, and to support the
development of alternatives to congregate care facilities. This site has much information,
including a focus on the evaluation of managed care for vulnerable populations.
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 Articles
Fact
Sheet: What Self-Determination Is, and What it is NOT
This resource sheet was developed by the National Resource Center on Supported Living and
Choice, Center on Human Policy
The
Obligations of Being a Support Broker This article, by Dennis Harkins, helps to define
the role of a service broker by outlining the roles and tasks support brokers accept in
agreement with the person they assist.
The Arc of the
United States Position Statement on Self-Determination
The
Medicaid Resource Book
This reference book, developed by the Kaiser Commission on Medicaid and the Uninsured,
describes four pivotal aspects of how the Medicaid program operates -- who it covers, what
it covers, how it is financed, and how it is administered. It was written to assist the
public and policymakers in understanding the structure and operation of the Medicaid
program.
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