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Supporting Individuals and Families to
Self Direct Their Lives Through the
Maryland New Directions Medicaid Waiver

 
What Self-Determination Is
What is Choice Really About?
Pointers to Manage Services
Public Funding for Individuals
Principles to Evaluate System

About the Project
MD New Directions Waiver
New Directions Fact Sheets
Person-Centered Planning
Individualized Budgeting
What is Self-Direction?
Regional Workshops
Planning Workshops
Creating an Individualized Budget
Resources and Links
Calendar of Events
Glossary of Acronyms & Terms
Position Announcement
Outreach Tools
Contact Us

My Life Home Page


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Inside the March - April 2005 Issue of TASH Connections:
Self-Directing Your Life (.pdf file)

 

My Life: Going FAR is a project of TASH.  

This project is funded by the Maryland Developmental Disabilities Council,
in cooperation with the Maryland Developmental Disabilities Administration.

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Sign up for the My Life: Going FAR email discussion group.   This group is for sharing questions, ideas, and sucess stories related to self-directing support services and for supporting people to self-direct and use the Maryland New Directions Medicaid Waiver.

Individuals with developmental disabilities, families, and interested advocates or supporters are welcome and encouraged to participate.

If you or someone you know is interested in the information, but does not have regular access to email or the internet, please call us at 410-828-8274 x109 and we will add you to our regular mailing list.

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What is Self Direction?

The Definition of self-determination: "the process by which a group of people, usually possessing a certain degree of national consciousness, form their own state and choose their own government"
 
Encyclopędia Britannica

Self-Direction. Self-Determination. Its about You, your family, and what it is important to you. But as the quote above explains, it is not "all by yourself," rather it is with a group of your trusted family, friends and allies are there to help you plan for your life and implement the plan.

The New Directions Waiver is based on self-direction, which is in many ways the same as the term self-determination. The promise of self-determination is rooted in increased quality, increased power for individuals with disabilities, increased status within the community for these same individuals and, at the policy and organizational level, a fairer, more equitable distribution of public service dollars.

This fundamental shift in power means that the service system has to adopt structural changes that make it possible for individuals and families to self-direct the public dollars for which they are eligible. At its heart the self-determination movement was committed to obtaining better value for the money. Self-Determination then, became organized around a set of principles rather than a set of human service interventions or environments. These principles are not human service categories – they are based on each individual receiving supports, at a very personal and transformational level:


The basic principles of self-direction or self-determination are:

Freedom, the opportunity to choose where and with whom one lives as well as how one organizes all important aspects of one’s life with freely chosen assistance as needed; It means deciding for yourself about:

  • how and where to work and live
  • what choices you want to make about your life
  • how to give to the community
  • what kind of services and supports to use (if any)
  • who to spend time with and love

Authority - the ability to control some targeted amount of public dollars; This includes:

  • having control over how to spend your service money
  • having the right to vote
  • being able to sign legal contracts (like one for buying a house, or for getting married)
  • being able to decide how money available for support services will be spent

Support, the ability to organize that support in ways that are unique to the individual; You may want or need support/assistance to:

  • care for yourself
  • be an active part of your community
  • find a job
  • buy a car
  • take care of your home

Responsibility, the obligation to use public dollars wisely and to contribute to one’s community. Along with freedom and choices, you also have the responsibility to follow or honor the ordinary rules and jobs of citizenship like:

  • voting
  • obeying laws
  • making responsible choices
  • participating in community life
  • making the effort to have positive relationships with friends, family, neighbors

Confirmation, the recognition that individuals with disabilities themselves must be a major part of the redesign of the human service system of long term care. In other words, you take control.


As the explained on the Individual Budget page- the design of the new system requires three essential elements:

Individual budgets which represent the translation of the person’s hopes and dreams into a budget document controlled by the person/family with assistance when needed.

Independent assistance or brokering which is the provision of unbiased and competent advice and support for the person with a disability in designing and carrying out the life plan and budget provisions.

Fiscal Intermediaries which are organizations or individuals who provide financial assistance with bill paying, accountability for public funds, taxes and benefits as well as other types of financial assistance that may be needed.

These system re-design features make it possible for any person with a disability, no matter how significant, to benefit. There can be no exceptions to the restoration of full citizenship to individuals with disabilities.


Support Services
Once you have an individual Budget,, you will then choose who you want as a service provider. Under the New Directions Waiver your options are:

  • Hiring and Supervising Your Own Staff
  • Purchasing services from an existing DD provider
  • Purchasing services from a community resource

 

 

 

My Life: Going FAR is a project of TASH
This project is funded by the Maryland Developmental Disabilities Council,
in cooperation with the Maryland Developmental Disabilities Administration.


State of Maryland
01/25/05