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 Family
Support
Strand
Sponsor:
California
Chapter of TASH (Cal-TASH)
Strand
Coordinator: Lynda Baumgardner
Join family members, self-advocates
and professionals as we learn new strategies and become systems change
agents for ourselves and our communities. This strand will include a
roundtable lunch discussion that will give families an opportunity to
share their successes and challenges as using community resources and
creative problem solving during the ‘wait” for services. Sessions
throughout the conference, not listed here, will be coded in the program
to indicate that they have a family focus.
Thursday,November 10, 2005
8:30 am - 9:30 am
The ABC's of Parent Leadership: Stepping Forward with Vision and Action
Parents
of children with disabilities often realize that to be successful
advocates for their children, they need to embrace leadership roles.
The role of a parent leader is not easily defined.
Because every family is unique, the ways that families demonstrate
leadership is also unique. As
families change over time, the ways that families demonstrate leadership
also change. This session will
provide a look at a leadership program and provide an opportunity to
discuss the challenges and successes of parent leadership programs for
families of individuals with disabilities.
Speakers: Barbara Buswell, Julie Harmon, Bronwen Buswell
12:45 pm - 1:45 pm
How are you surviving the "Big Wait"?Roundtable Luncheon
How do
families handle transition from high school to the living room while
waiting for services? Family
members will have the opportunity to share their successes and failures at
using community resources and, creative problem solving during the
"Big Wait".
Speakers: Diana Sullivan
2:00 pm - 3:00 pm
My Sister/Brother's not "Special": Siblings Resist the
Literature
As
siblings to a sister and a brother with a disability, we don't have to
learn inclusion; it is simply a way of life. Erving Goffman would term us
the "wise." It has been and continues to be a privilege growing
up with our respective siblings who happen to have disabilities. Join us
as we share our experiences of growing up with a sister and brother with a
disability through jubilant story telling that challenges traditional ways
of viewing disability that stigmatize siblings with and without
disabilities.
Speakers: Amanda Musolino, Zachary Rossetti
3:15 pm - 4:15 pm
First Steps: Point Of Entry Guide For Services For People with
Disabilities and Their Families
The
First Steps: Point of Entry Guide is a navigational tool to assist
individuals and their families in connecting with social services and community agencies in
Delaware
. This presentation will cover
the process and results of the project to date.
Speakers: Tracy Mann, Jamie Wolfe, Ann Phillips, Aaron Deede
4:30 pm - 5:30 pm
Typically Developing Siblings of Children with Autism: Are They
Different?
Find
out 1) if development of siblings of children with autism differs from the
development of siblings of children with other disabilities and no
handicaps, and if so, in what ways; and 2) what factors predict
developmental outcomes, and how?
Speakers: Yulika Forman
Friday, November 11, 2005
8:30 am - 9:30 am
The Role of Family Support in Successful Employment Outcomes for women
with Significant Developmental Disabilities: A Qualitative
The
presentation will focus on the impact of three types (intensity levels) of
family support provided to young women with disabilities during
the transition years on eventual post-high school employment
success.
Speakers: Keith Vire
8:30 am - 10:45 am
The Parents' IEP: Investigate,
Educate, Partner
This
presentation offers parents of children with disabilities three basic
steps in preparation for making informed and effective choices for their
children. The presenters will
illustrate how these principles can be effectively utilized in planning
for an array of services and inclusive opportunities for children with
disabilities.
Speakers: Donna Omichinski, Laurie Lundblad
9:45 am - 10:45 am
Families of Children with Autism in
China
: Living and Learning Together
Research
was conducted at a short-term intervention program for families with
children with in
China
, examining caregiver change in terms of skills and attitudes, as a result
of attending the program. Results indicate benefits and limitations of
this experience.
Speakers: Helen McCabe
11:00 am - 12:00 pm
OUR QUEST: To Dream the not
so Impossible Dream
The presentation will take parents/guardians on
an interactive journey as their children move
from kindergarten through to the
post secondary stage .It will examine the bumps ,potholes ,toll
gates and splendid vistas along the way. Life stories will be shared by
the presenter as a parent/educator that will highlight the challenges and
provide strategies and sources of support to assist in reaching
your eventual destination.
Speakers: Ashleigh Molloy
1:30 pm - 2:30 pm
Children's Stories; Pre-service Teachers Team up with Families
This
session is intended to share stories of children with moderate special
needs. For three years, the
presenter has paired pre-service special educators with children 1 to 18
years of age and their families to collaborate on the development and
sharing of the child's story.
Speakers: Janet S. Sauer, Lauren Erbach, Molly Morrow, Jill Lueken
2:45 pm - 3:45 pm
Inclusion, rights, respect, empowerment and friendship-That's TASH
For
over 20 years, as a family, we have been learning about these concepts
from people like Lou Brown, Herb Lovett, Doug Biklen, Steve Taylor,
families, self advocates and others. We
will describe how TASH influenced our decisions and experiences,
especially with our son Ben, but also as professionals in the disability
field.
Speakers: Sue Lehr, Ben Lehr, Bob Lehr
4:00 pm - 5:00 pm
It's Gotta Be Good: Two Old
Broads Contemplate the Future
Katherine
Dumas and Andreas Yuan have lived a good long time in their aging
families' homes. Join their mothers, old friends, as they describe
struggles, setbacks, triumphs, ridiculous moments, and hope for good
community lives for Katherine and Andreas.
Speakers: Susan Yuan, Shelley Dumas
Saturday, November 12, 2005 – Poster Sessions
8:30 am - 10:30 am
The Ecocultural niche of Middle Eastern-American families of children
with disabilities
Sound
Response is an innovative way to provide overnight support to individuals
with disabilities through the use of technology and professional staff. An
effort to offer more independence and costs savings, Sound Response is a
preferred alternative to traditional approaches.
Speakers: Sara Goldberg-Hamblin, Salam Kuaidar, Jennifer J. Coots
Understanding Fetal Alcohol Syndrome: A Lifespan
Approach
Based
on previous studies, this presentation (a) reviews effects of FAS during
five stages of lifespan development: fetus, infant, children, adolescents,
and adults, (b) presents intervention programs and treatment strategies
and (c) notes suggested ways to prevent FAS
Speakers: Bernadette Gadzella, Victoria Zascavage
From Parent to Disability Professional: Role
Change, Resilience, and Rewards
Research
is presented on parents of children with disabilities who are
"professional parents," using their experiences and expertise to
support parents and teach professionals about families.
Results suggest influences of becoming a professional on
resiliency, attitudes, and cognitive adaptation.
Speakers: Helen McCabe, Susan M. Klein
Families Under the Flag
This presentation gives an overview of the services and supports that
Specialized Training of Military Parents (STOMP) can provide to military
families located in any branch of service or installation.
Speakers: Ronda Fullerton, Heather Hebdon
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