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People of Color with Significant Disabilities


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People of Color with Significant Disabilities and Their Families Strand
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Ensuring Equitable Access to People of Color with Significant Disabilities and Their Families

Strand Coordinators: Wanda Blanchett and Ralph Edwards

This strand was formed to address the needs of people of color with significant disabilities and their families. Despite much evidence that suggests that people of color experience significant disabilities at disproportionate rates when compared to their white peers, little attention has been given to ensuring that essential education and community-based services and resources are tailored to their needs. For this reason, this strand offers sessions that will inform educators and service providers of the prevalence of development disabilities in communities of color, the strengths and resiliency of individuals of color with significant disabilities and their families, and community and political action that is needed to ensure that people of color with significant disabilities and their families receive equitable access in all arenas and facets of life. The strand is being co-sponsored by The Joint Center for Political and Economic Studies (www.jointcenter.org), a national, nonprofit research and public policy institution, who will be publishing the proceedings from this strand in cooperation with TASH.

Thursday, November 10, 2005

9:45 am - 10:45 am
Health Disaparities of People of Color with Disabilities
People of color experience higher morbidity and mortality rates, have less access to services due to lack of insurance and/or availability of services, and endure greater negative health and social consequences in comparison to whites.  The presence of a disability exacerbates these experiences and outcomes.  This interactive session will present an opportunity for participants to discuss the Joint Center Health Policy Institute (HPI) and its efforts to identify and address the economic, social, environmental and behavioral determinants that can lead to improved health outcomes, especially as it relates to people of color with disabilities. Speakers: Gail C. Christopher

2:00 pm - 3:00 pm
Families of Color's Perspectives on the Interaction of Race, Culture, and Developmental Disabilities

Families' success in managing disabilities and securing relevant services is influenced their ability to successfully negotiate the "white American experience" as they interact with providers, policy-makers, and other citizens in their pursuit of appropriate services for their family member with a significant disability. This session will highlight two families of color's lived experiences with regard to the influence of  race and culture on their ability to successfully gain access to services, appropriate assessment and service planning, and community inclusion while maintaining their individual family dynamics.
Speakers: Ralph Edwards, Linda Rodriguez, Kerri Tyler

3:15 pm - 4:15 pm
Working Effectively with Families of Color

Families of color are resourceful, engaged, and committed to the health and well-being of their family member with disabilities. Three advocates (two from an urban and one from a suburban area), will discuss effective strategies and techniques to empower families of color as they seek and access desired and needed services. This session will also highlight system-level barriers and attitudes that serve to deny families of color access to needed resources and services. Strategies for overcoming these system-level barriers will also be discussed.
Speakers: Charlotte Cronin, Charlotte R. Spinkston, Pat Patterson

Friday, November 11, 2005  

9:45 am - 10:45 am
What is Cultural Competence? Serving Individuals of Color with a Disability

This session will give participants an overview of central constructs that influence cultural diversity, present a framework for understanding cultural competence and critically examine commonalities and differences among various cultural groups.  Participants will gain knowledge of the role that cultural factors play in determining the behaviors and attitudes of African American and Latino consumers with disabilities as  they try to navigate monocultural educational and service delivery structures. Additionally, this session will discuss consumer participation, outreach, retention and intervention from a cultural competence perspective.
Speakers: Fabricio Balcazar, Celestine Willis

11:00 am - 12:00 pm
Vision cón Esperanza 360  / Visions with Hope 360°

The purpose of this presentation is to describe a family national demonstration project that serves Latino families in Kansas City who have children with disabilities. As a result of intensive work with various focus groups, a generic agency that provides services to Latino families has been engaged in a partnership that will build the agency's capacity to work with Latino families that are experiencing a disability.  In addition, this session will describe and discuss the outcomes of support groups that were designed to prepare Latino parents to be problem solvers for themselves and other families. Speakers: Carl F. Calkins, Michelle Reynolds

1:30 pm - 2:30 pm
Education and Employment Options for Young Adults with Disabilities through Cultural

Cultural Brokering is a mechanism to improve access and outcomes in postsecondary education, training, and employment for young adults with disabilities from diverse cultures. Young adults from non-mainstream backgrounds experience the worst postsecondary educational opportunities and tend to remain under- or unemployed, lack satisfying social networks, and experience a quality of life remarkably different from those of their peers without disabilities (Hasnain, 2001).  In this session, participants will learn how cultural brokering can enhance the learning environment and outcomes of diverse individuals with disabilities.
Speakers: Rooshey Hasnain

2:45 pm - 5:00 pm
A Town Hall on Meeting to Develop a Political & Community Action Plan for Ensuring Equitable Opportunities for People of Color with  Disabilities and their Families
A Town Hall meeting format will be employed to elicit participants' ideas regarding the next steps in increasing people of color's access to services, resources, and participation in national and local advocacy organizations with a particular focus on political and community activism to ensure that the rights of people of color with disabilities are not denied or benignly neglected. Local political and community leaders will also be invited to participate in this town hall meeting in hopes of involving civil and human rights activists in the struggle for equitable treatment of people of color with disabilities.
Speakers: Wanda J. Blanchett, Allen C. Crocker, Ralph Edwards, Barbara Ransom